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The Simplified Handbook for Living with Heart Disease

 

 

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  I was greatly influenced by a group of non-traditional heroes. They were Ben Franklin, Thomas Jefferson and John Adams. Remember, I was raised in Philadelphia so it was a usual practice to ride my bike downtown and visit the historical locations.
My family influencers were my mother and father, who taught me the value of hard work, my Uncle Ben, who taught me to challenge everything and my Uncle Joe who taught me to be accepting, challenge conventional wisdom and be endlessly curious.

 

 

 

 

The Simplified Handbook for Living with Heart Disease

 

 

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The Simplified Handbook for Living with Heart Disease

 

 

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  When I saw Caplan sometime later, he had the paper. He said that what I had written was really a core curriculum for four chronic diseases, heart disease, diabetes, COPD and renal failure. Would I expand and expound on what I had written. I didn’t really want to but I did and “The Simplified Handbook For Living With Heart Disease and Other Chronic Diseases, is that result.

 

 

 

 

 

The Simplified Handbook for Living with Heart Disease

 

 

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The Simplified Handbook for Living with Heart Disease

 

 

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The Simplified Handbook for Living with Heart Disease

 

 

 

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                                                             Warren and Donna Selkow


Warren and Donna Selkow find themselves in a unique position to address and write about the
problems of living with coronary artery disease. In October of 2000 Warren had a "mild" heart attack. The event (the word used by the medical establishment) revealed a very serious underlying condition, a failing aortic valve. Subsequent testing revealed four completely blocked veins, a failing mitral valve and a large aneurism on the aorta. He was scheduled for open-heart surgery to repair all the damage that included a four-way by-pass, a new mitral ring and replacement of his aortic valve with a mechanical devise.

By the end of 2001 Warren found himself in seriously declining health and another test revealed he had a leak in his heart and a mitral valve on the verge of complete failure due to the leak. In January of 2002 he had that valve replaced and a pacemaker implanted.

Donna Selkow was called upon to provide the day-to-day care to ensure Warren's survival. Donna already had extensive experience in caregiving to seriously ill people that literally started when she was a child and she looked after her grandmother. Donna became educated about heart disease and with this education and her already well developed sense of what good care means, nursed her husband through the worst of the times which did not end with just the simple healing of the surgeries. No, her care would be required for the following many years.

Warren was a business executive in the sales and marketing area of Information Technology. During his career he was employed by National Cash Register, Honeywell, IBM and Siebel Systems. He was employed by Siebel Systems when the heart attack and ensuing surgery disabled him and ended his working days.

Donna was a stay-at-home mom who raised their children (as Warren says, “almost single-handedly) due to his travel schedule.

The Selkow's now reside in the Phoenix area and are completely retired. They have two grown children and two grandchildren, both now in their teens.

The Simplified Handbook for Living with Heart Disease and Other Chronic Diseases by Warren and Donna Selkow is a must-read for those living with heart disease, diabetes, COPD, or renal failure. A survivor of two open-heart surgeries, and his caregiver wife, offer a straightforward first person guide that will save lives. Readers will discover comprehensive physician-reviewed, approved and endorsed information about the various tests leading to a diagnosis, specifics about open-heart surgery and making it through Intensive Care. Sections include preparing for surgery and recovery, diet, medications and exercise, the emotional side effects of depression, anxiety, and stress, and living a life of fitness and productivity. Based on the personal experiences of patient and caregiver, information is delivered with humor and in-your-face honesty. From the first diagnosis of heart disease to living a long and healthy post-surgical life, this book delivers at all levels. http://www.simplehand.org

 

*The results of the 2010 International Book Awards have been announced.

The Simplified Handbook for Living with Heart Disease and Other Chronic Diseases has been honored as a "Winner" in the "Health: General" category




Books-And-Authors.net:  Where did you grow up and was reading and writing a part of your life? Who were your earliest influences and why?

Warren Selkow:  I was born and raised in Philadelphia, Pa. I am a product of the public education system that existed in that large city at that time. This is important only in so far as I was educated in a system that prized “normal” and I was not that. Oh for the days of the “red menace”, Joe McCarthy, the House Un-American Committee and dear old Dwight Eisenhower, our President. You know, an easier time when the only thing you had to fear was the rampant bigotry and ignorance and stupidity. Other than that it was an ideal time.

I was greatly influenced by a group of non-traditional heroes. They were Ben Franklin, Thomas Jefferson and John Adams. Remember, I was raised in Philadelphia so it was a usual practice to ride my bike downtown and visit the historical locations.
My family influencers were my mother and father, who taught me the value of hard work, my Uncle Ben, who taught me to challenge everything and my Uncle Joe who taught me to be accepting, challenge conventional wisdom and be endlessly curious.

Back to my education; when I was in the third grade I was doing very poorly. My mother thought I was bored so she took me to the Philadelphia Library and got me a library card, my very own library card (what a great gift is a library card). The school system was determined I read at a third grade level. The only problem was I was reading at a six and seventh grade level. So I would have to say that reading was very important to me. I currently read between two or three novels a week and have for many years. It was only as an adult that I learned that I could write an intelligent sentence, paragraph and chapter.
 



Books-And-Authors.net:  Why did you write The Simplified Handbook for Living with Heart Disease and Other Chronic Diseases? What is your personal story?

Warren Selkow:  On October 10th, 2000, a Thursday, I woke up at about 11pm with the worst case of indigestion I had ever had. This is quite amazing given my years of eating everything that got near my mouth or was within reach. Antacids did not help. In great distress I flew to my computer (I did not have to open a sash and there was no Santa Claus) and Yahooed “heart attack symptoms.” Of the eight listed symptoms I was having seven. The only one I was not having was “death” which I would say is probably a symptom discovered as a result of a post mortem.

Fortunately for me I lived only five minutes from an Emergency Room and off we went. The blood test confirmed I was in fact having a heart attack, which the ER docs quickly stopped and saved my sorry butt. Thank you, thank you, and thank you.

The following morning I as given an echocardiogram and the tech told me the great medical lie. I asked what she saw and she said, “I don’t read them, I only take them.” As she finished the test my wife and son showed up in the room. It was not yet 8am. I am worried about when I can go home. A few minutes after the tech left my room, a nurse showed up and began puttering around the room. We did not think too much about it at the time but the cardiologist who wanted her to keep and eye on me sent her there. A few minutes later, the cardiologist, Dr. Steven Raskin, appeared as if by magic (Dr. Raskin would turn out to be a life saving blessing in disguise).

Dr. Raskin quickly figured out what kind of Type A jerk I was and without wasting a word said: “You have a chronic, serious and severe leaking aortic valve and if it is not repaired you will be dead in six months.” I replied, “Can’t be. I am scheduled to start a class on methodology on Monday, there are a hundred or so consultants scheduled to take that class. And the following week I am the keynote speaker at a major industry function in Atlanta, and several thousand are scheduled to be there.”

The good doctor didn’t miss a beat and said to me, “Well you may be going but you will not be coming home.” As you can guess, I retired that very day. I was only fifty-eight. A subsequent angiogram revealed I had four completely block arteries and an aneurism larger than a golf ball on my aorta. On October 26 all those problems were fixed and a few others like a malfunctioning mitral valve. I received a four-way bypass and my aortic valve was cut out and replaced with a St. Jude mechanical valve.

I was sent home to heal. And I did until the following June or so. I started to decline and nobody seemed to know why. In December 2001 I got seriously sick again and a test revealed my mitral valve had sprung a leak. On January 10th, 2002, that valve was replaced with another mechanical valve. I could not sustain a regular heartbeat so a pacemaker was implanted. In November of 2002 my heart still could not sustain a regular beat so an AV node ablation was done. I am now completely dependent on my pacer and have no complete natural heartbeat of my own. Ain’t technology great? Now I am bored to tears about my story so please don’t ask again.

 


Books-And-Authors.net:  How has your personal lifestyle for better health changed? Exercise? Diet?

Warren Selkow: My lifestyle has undergone a tremendous remake. My daily routine includes an hour of low impact exercise (seven days a week), carefully monitored intake of salt and stringent rules as to daily intake of fat. Believe this, if I can do it, anybody can.

 


Books-And-Authors.net:  In The Simplified Handbook for Living with Heart Disease and Other Chronic Diseases, you write "When I first started to write this, I had no plans as to what the final use of this book would be. In fact, it wasn’t even a book. It was, at best, a short monograph." Explain.

Warren Selkow:  In 1492 Christopher Columbus found what would be dubbed “The New World).” Oh, wait, that’s another story. The book came about the following way:


1. My wife got sick and tired of listening and watching me bore anyone I could latch on to and explain about my surgery and what a poor boy I was. Stop complaining to strangers, she chided me, and start writing some of this stuff down.

2. I had some serious up and downs, mostly downs, and was fortunate enough to have my cardiologist fire me. I was sent to another cardiologist. Thank you, thank you and thank you again. My new cardiologist was Dr. Joseph Caplan. As part of his practice he made me enroll in his well-ness clinics, including lipid and CHF counseling. It was during one of those sessions; conducted by Michele Ridings, his RN in charge of education I had a curious thought. “If I had only known all this stuff when I first got sick, my life would have been very different.”

3. I wrote a paper of about 20 or so pages entitled, “Confessions of a Foodaholic”. I gave the paper to Michele and asked her if she would just show it other patients. She didn’t do that. She gave it to Dr. Caplan, instead.

4. When I saw Caplan sometime later, he had the paper. He said that what I had written was really a core curriculum for four chronic diseases, heart disease, diabetes, COPD and renal failure. Would I expand and expound on what I had written. I didn’t really want to but I did and “The Simplified Handbook For Living With Heart Disease and Other Chronic Diseases, is that result.

 



Books-And-Authors.net:  What is arrhythmia? What is CAD?

Warren Selkow:  Arrhythmia simply means “irregular” heart beat. It comes from the Greek, Ar, which means irregular, and “rhythm” which means “I got it rhythm, who can ask for anything more? Sorry about that. CAD is simply Coronary Artery Disease.



Books-And-Authors.net:  In The Simplified Handbook for Living with Heart Disease and Other Chronic Diseases after surgery you write "Start to demand stool softeners and drink as many fluids as you possibly can. You are going to have to move your bowels before you get to the next phase of care and without those stool softeners, it will be very painful and difficult." Explain.

Warren Selkow: After surgery a patient is given mega doses of pain relievers, usually in the opiate family. Good stuff for easing pain, bad stuff when it gets to patients bowels. These drugs turn the bowels to concrete. Trying to take a healthy bowel movement is very painful and very, very difficult. Liquids and stool softeners greatly alleviate this problem.

 


Books-And-Authors.net:  You write: "The path to recovery is almost identical to the path traveled by someone coping with the loss of a loved one. An important part of your life will be taken away from you and you will have to grieve for that loss." Explain.

Warren Selkow: A result of the drugs is depression. Serious depression. In many cases a patient loses the ability to earn a living and a total career. (That happened to me.) The ID, EGO and Libido take a serious hit. A patient has to grieve the loss of all of those things and until that grieving takes place there is no getting over the depression and no getting better.

 

 

Books-And-Authors.net:  You say, "it is now time to talk about the worst part of the whole damn ordeal: depression and the accompanying stress and anxiety." Explain.

Warren Selkow:  Here is a terrible fact of heart disease:  A full 99.9% of those having open-heart surgery suffer from depression.  Within two years after the surgery, 9% or so will commit suicide.  Now isn’t that a depressing statistic.  Yet, this is not discussed or publicized.  The American Heart Association now recognizes depression for the problem it is and has asked its’ members to solicit information from the patient as to the severity of the problem.  The AHA estimates at least 50% of all cardiologists do not bother.

We spend a lot of time discussing this issue.  More importantly, we discuss what can be done. 

 

 

Books-And-Authors.net:  You wrote The Simplified Handbook for Living with Heart Disease with your wife -- How much input did she have and how did you two share in its writing?

Warren Selkow: Donna contributed all the intellectual content in those sections called Caregiver notes.  This is somewhere between 25% and 40% of the book.  Much of the material written by me as the patient was influenced by Donna’s comments and input.  It would not be incorrect to say Donna deserves almost 100% credit for the entire effort.  If it were not for her, I would not have survived the ordeal. 

 

Books-And-Authors.net: How did your wife learn to be a caregiver after your surgery? Are there classes for caregivers? What are the activities of a caregiver? Physical & Emotional?

Warren Selkow: Donna did not learn to be a caregiver after I got sick.  Donna learned how to be a caregiver by nursing to grievous ill sisters, a mother, a father, a brother in law, two grandmothers and many others.  This does not count just the caregiving involved with raising a family.  Donna’s skills were well honed by the time my sorry butt got home from the hospital. 

The caregiver must simultaneously be a:

1.    Practical nurse

2.    House keeper

3.    Cook

4.    Companion

5.    Supporter

6.    Driver

7.    Lots of other things.

 

Caregiving is both physically and emotionally draining.  It is hard to watch a loved one suffer and not be able to do much to make the healing go faster.  The work gets even harder when the patient gets very depressed and becomes uncooperative.

 

 

Books-And-Authors.net: What advice does your wife (Caregiver) have for someone going through or preparing to bring home a loved one from the hospital?

 

Donna Selkow:

1.    Get the house prepared prior to the patient getting home.

2.    Get educated as to all the things the caregiver is going to have to know including everything the patient needs to know about diet, drugs and therapy.

3.    Be prepared for the long haul and be prepared to lose sleep.

4.    Be prepared to be aggravated.

5.    Be prepared to do the cooking and cleaning

6.  If you can’t do all of the above, get help.

7.    Read the book for everything else and there is a lot to learn. 

      

 

Books-And-Authors.net: How does the personal schedule of a caregiver change when they are a family member?

 

Donna Selkow: Not much of a change other than caregiving is a 24/7 job with no time off.

 


Books-And-Authors.net:  What are readers saying about The Simplified Handbook for Living with Heart Disease and Other Chronic Diseases ?

Warren Selkow: This is what are others are saying about the book. There are more comments at http://www.simplehand.org

"As a book editor, I encounter a wide range of authors, genres, and writing styles. Warren Selkow's book resonates like no other. The impact of Warren's presentation exceeds anything a medical professional could achieve in educating at-risk people about the immediate need for lifestyle changes. With its perceptive commentary from coauthor Donna Selkow, this book is a must-read for patients and caregivers. Physicians who treat patients with chronic disease, regardless of etiology, will benefit too. The Simplified Handbook for Living with Heart Disease may even be a lifesaver., My sixty-five-year-old husband is an overweight type 2 diabetic and has heart disease. He got there with my help. Calories, schmalories. How about a steak with a loaded baked potato? Another beer? I'll join you! As a neuropathologist, he knows the intimate details of the ways in which chronic disease ravages a body. I imagine he sees himself in every sixty-something person who succumbs to the ailments that plague him. I know he does. He told me last night about a fifty-five-year-old colleague who died while taking his morning shower. I wondered about what the man's wife must be going through. And, after thirty-five years of marriage, we didn't have to say it aloud—it's time to make some changes. Big ones., After editing The Simplified Handbook for Living with Heart Disease, I took steps toward improving our diet and exercise routine. I realize now they were baby steps. That's why I'll be first in line to buy a copy of  WarrenSelkow's book. I hope it’s available to give to my husband as a birthday present this fall.", Gail Chadwick, Editor,

 "I have found the book very interesting and I think everyone over forty years of age should read it. This book explains the pain before the heart attack, the pain while having the attack and your recovery from it all. When you are at home with the family, you all have concerns at that time, and the book explains how to appreciate these concerns for the betterment of all.", Paul Beck, Cardiac Patient,

 "Mr. Selkow has written a no-holds-barred, front-row account that every heart patient should read., It is thought provoking, amusing, hard hitting and direct. I will give it to all my cardiac patients.", Dr. Edward Kowaleski, Internal Medicine, Medical Director, Banner Arizona Medical Clinic, Peoria, Arizona,

"WOW! This fast reading handbook has invaluable facts and tips for the heart patient to be, the recovering patient, and the caregiver. It convinced this patient to follow prescribed diet and medicines.", Jim Sterling, Glendale Arizona, Cardiac Patient,

"The Simplified Handbook for Living with Heart Disease is an excellent personal insight to the process of learning to live with heart disease and tools to change your lifestyle to live to your life’s full expectancy.", Mark Bank, MS, CES, Manager, Banner Boswell Center Cardiac Rehabilitation Program, must be acknowledged and treated for the healing process to begin."

 

 



Books-And-Authors.net:  What do you hope to achieve with The Simplified Handbook for Living with Heart Disease and Other Chronic Diseases?

Warren Selkow:  I will achieve the following with the book:


1. Generate revenue to fund the not for profit web site.
2. Become, through the web site, as a recognized place to go to get informed about the chronic diseases we write about.
3. Make the lives of heart patients and their caregivers easier and less stressful.

 




Books-And-Authors.net:  You say, "Go to library and read two or three books a week." What was the last book(s) you read/

Warren Selkow: I read many books. In the past few months I have read books by Walter Mosley, John Lescroart, Robert Parker, J. A. Jance, Henry Gates, Jr., Donald Westlake, Richard Stark, Barbara Tuchman, The biography of John Adams, The History of Time (for a second time and I still don’t understand it after the middle) and many other things. I watch no day time TV. I will watch a ball game, rarely miss them in fact, and feetsball during the season. I forgot to mention the current book I am reading by Elmore Leonard, which I will finish some time tomorrow.
 

 


Books-And-Authors.net:  What's next?

Warren Selkow:  I have no idea as to what is next. All I am really focused on now is getting my book into the hands of those that need it. And to continue to upgrade the web site.

 



Books-And-Authors.net:  Do you have any hobbies? What are they? How do they enhance your writing?

Warren Selkow: Hobbies? Surely you jest. Hell, I’m lucky I can find my butt with both hands in a dark room.
 

 

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